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To search for resources, type relevant keyword(s) in the "Find Resources" box on the left. You may also browse content by resource type, topic, audience, condition, and/or skill level using the filters below the keyword(s) field. For further instructions on how to use this portal to find the resources you need, go to the page on How to Use This Portal.

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Patient Engagement Toolkit
Provided by:
Kaiser Permanente Center for Health Research
Topic(s):
Advisory Panels, Engagement Experiences, Engagement Recommendations, Engagement Techniques, Frameworks and Strategies, Research 101, Stakeholder Identification
Audience:
Caregivers/Family Members, Community/Advocacy Organizations, Patients/Consumers, Researchers
Partnership Sustainability Toolkit Library
Provided by:
Trailhead Institute
Topic(s):
Engagement Techniques, Frameworks and Strategies
Audience:
Caregivers/Family Members, Community/Advocacy Organizations, Patients/Consumers, Researchers
Operational Manual for Engaging Sickle Cell Patient Families in Patient Centered Outcomes Research
Provided by:
Vanderbilt University
Topic(s):
Engagement Techniques, Frameworks and Strategies
Audience:
Researchers
Partnership Mission, Vision, and Roles
Provided by:
The Council for Jewish Elderly dba CJE SeniorLife
Topic(s):
Frameworks and Strategies
Audience:
Researchers
Strengthening Diversity in Research Partnerships
Provided by:
Institute for Patient- and Family-Centered Care
Topic(s):
Frameworks and Strategies, Representation in Research
Audience:
Caregivers/Family Members, Community/Advocacy Organizations, Patients/Consumers, Researchers
Successful Partnership Checklist
Provided by:
University of Maryland
Topic(s):
Frameworks and Strategies, Research Advocacy, Stakeholder Identification
Audience:
Caregivers/Family Members, Patients/Consumers, Community/Advocacy Organizations
Putting your Best Foot Forward: Establishing Partnerships with PCOR Stakeholders
Provided by:
University of Maryland
Topic(s):
Engagement Techniques, Facilitation, Frameworks and Strategies
Audience:
Caregivers/Family Members, Patients/Consumers, Community/Advocacy Organizations
The Different Levels of Patient Engagement
Provided by:
University of Maryland
Topic(s):
Frameworks and Strategies
Audience:
Caregivers/Family Members, Patients/Consumers, Community/Advocacy Organizations
A Toolbox for Creating Sustainable Partnerships with Patients and Families in Research
Provided by:
Institute for Patient- and Family-Centered Care
Topic(s):
Frameworks and Strategies, Engagement Recommendations, Engagement Techniques
Audience:
Patients/Consumers, Researchers, Caregivers/Family Members, Community/Advocacy Organizations
Defining Patient Partnership in Research
Provided by:
CERTAIN Patient Advisory Network
Topic(s):
Engagement Techniques, Engagement Recommendations
Audience:
Patients/Consumers, Researchers, Community/Advocacy Organizations, Caregivers/Family Members