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Resource
Toolkit on Patient Partner Engagement in Research (TOPPER)
by HIPxChange

Summary: 

TOPPER is a comprehensive set of orientation materials that were created for patient partners on the Patient-Centered Outcomes Research Institute (PCORI)-funded study, “Family-Centered Tailoring of Pediatric Diabetes Self-Management Resources” (Principal Investigator: Elizabeth Cox, MD, PhD). In this project, the patient partners are parents of youths and teens with type 1 diabetes and serve on the Parent Advisory Boards for the project; however, the materials in TOPPER can be adapted for a variety of types of patient partners.

Topics: 
Facilitation
Audience: 
Researchers
Format: 
Written Document (PDF, etc.)

This resource was contributed by:
Staff, Editors
CERTAIN Patient Advisory Network

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